Data & Survey Results

Your Experience Informs Our Advocacy

Raising Voices Coalition collects data from caregivers, self-advocates, providers, and community members to elevate real-life experiences and drive meaningful policy change. Through community surveys, we gather the stories, trends, and challenges that too often go unheard—and we use them to inform decision-makers at every level.


This page is your hub for participating in active surveys and exploring the impact of past findings.

Past Surveys Results

See how your input is creating impact!


We’re committed to transparency and accountability. Below you’ll find published summaries, infographics, and downloadable reports from past surveys that have helped influence policy conversations, public awareness, and legislative change.

PMPM Cost Analysis and Trends (2019-2024)

This report presents a comprehensive analysis of the financial and human impact of Home and Community-Based Services (HCBS) in Arizona, particularly in relation to medical and behavioral health costs.

View The Report

Effectiveness and Evaluation of Paid Parent Providers of Disabled Minors as a Permanent Option for Families in Arizona – 2023

A statewide survey of over 2,000 caregivers sharing their experience with the (Parents as Paid Caregivers) PPCG program 

View The Report

2025 AZ Caregiver Survey - 2025

This survey sheds light on the critical role of Medicaid-funded services and the realities caregivers face across Arizona.

View The Report

Have questions about a survey or want to suggest a new topic?

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